I often feel it almost impossible to convey what it’s like to be the primary caregiver of a child with complex needs. Sometimes when I post things, people say they get it, but the simple fact that they think they do, speaks to just how much they don’t.

My son is 12, but we joke that he’s like an infant or a two-year-old, but the truth is that it’s more like both an infant and a two-year-old together and then some.

Exhibit A:

This was my night’s sleep, my husband was up both with means a few times separately.


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