However, a new-to-us GI doctor saw him today, blithely pronounced his problem a hypersensitive gag reflex and told us to stop asking for tests because we weren’t going to find anything. I wasn’t here, which is probably a very good thing, but when I see him later, I will ask this doctor one thing: “Would you have said that if he didn’t have Down syndrome?”
Thankfully most of our doctors have a healthy respect for Ben, his complex medical history, and us as his parents and primary advocates, but this doctor is not alone in his dismissive attitude. I don’t expect a silver bullet at this point, nor do I hang my hope on a single test to provide Ben a life of improved health and wellbeing. But I do believe that there’s a puzzle which needs to be solved, and to the best of my ability I will ensure that we get there.
I wonder, though, why a doctor thinks it’s okay for a child to have vomiting refractory to the best interventions that modern medicine has to offer and to recommend that we, his parents, just accept that as status quo. I wonder why a child’s suffering means so little to him that he can dismiss it so readily, and and I wonder why he became a pediatric specialist if he doesn’t regard my son’s quality of life as important enough to for us to deserve answers and management. I am thankful this doctor is the exception.
So, sir, I will continue to do everything in my power to help my child, regardless of what you think.